Sam Kromstain
Chief Legal Counsel
Sam's our legal voice locally and in Washington, D.C.

Our aim is to empower individuals, their families, friends and healthcare professionals to be advocates, sharing their knowledge and experiences to help others.  In addition, we hope to spark an interest in others to continue research efforts that may help to prevent or even one day provide a cure!

Mark Priston
​Social Media
Mark helps us get the
​ word out one tweet, post, and like at a time.
John McCoist
Chief Financial Officer
John manages the money to keep our services flowing.
Our Purpose

Learn more about our founder, Amy Laws

In an attempt to reach as broad of an audience as possible, this group was formed out of an inspiration to bring support and science together, in one  unified effort.  By offering  direction in finding appropriate resources and teaching one to use their voice, we hope to alleviate some of the day to day struggles, along with updated and more effective treatment options for Lesch-Nyhan.
Our Goals
Bradley Grosh
​Community Outreach
Bradley manages our ever-important relationships within the community.
Is to create awareness in the community.  This will allow for an earlier diagnosis, a quicker treatment regiment and the possibility of alternate research opportunities.  

About Us

Is to bring together, provide a voice and share knowledge to anyone who has ever been or may ever be touched by Lesch Nyhan.  In our initiative to support individuals, we will coordinate   communications from others.  Although personal experiences are unique, they can offer a sense of compassion and understanding unlike anyone else.