Is to create awareness in the community. This will allow for an earlier diagnosis, a quicker treatment regiment and the possibility of alternate research opportunities.
Is to bring together, provide a voice and share knowledge to anyone who has ever been or may ever be touched by Lesch Nyhan. In our initiative to support individuals, we will coordinate communications from others. Although personal experiences are unique, they can offer a sense of compassion and understanding unlike anyone else.
National Support & Advocacy Group
Our aim is to empower individuals, their families, friends and healthcare professionals to be advocates, sharing their knowledge and experiences to help others. In addition, we hope to spark an interest in others to continue research efforts that may help to prevent or even one day provide a cure!